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Bollywood actress Fatima Sana Shaikh, known for her breakthrough role in Dangal, recently shared her journey of living with epilepsy. Diagnosed while filming Dangal, the actress opened up about the challenges she faced, including her initial reluctance to seek treatment. In a candid interview, Shaikh explained her denial and fear, particularly around having an episode in public. She noted the stigma often associated with epilepsy, saying, “People think you’re either on drugs, seeking attention, or possessed.”
Initially, Fatima tried to lead a normal life without consistent medication, resulting in frequent seizures. The condition eventually led her to limit her public appearances to avoid potential triggers, such as flashing lights, which can induce seizures. Over time, she grew more open about her diagnosis, even informing the paparazzi about her condition to help them understand her needs.
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Understanding Epilepsy
Epilepsy is a neurological disorder that leads to recurrent, unprovoked seizures. Affecting millions globally, it is one of the most common neurological conditions. According to the Centers for Disease Control and Prevention (CDC), nearly 3 million Americans live with epilepsy, with about 200,000 new cases diagnosed each year.
Seizures occur when there is a disruption in the brain’s normal electrical activity, causing periods of abnormal signalling between neurons. While anyone can experience a seizure under certain conditions, such as high fever or low blood sugar, a diagnosis of epilepsy is typically made when an individual has two or more unprovoked seizures.
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Common Causes of Epilepsy
Epilepsy can result from several factors, including:
- Brain Injury: Physical trauma to the brain can lead to epilepsy.
- Genetics: Family history of epilepsy increases the risk.
- Stroke or Tumour: Brain tumours and strokes are also linked to epilepsy, particularly in older adults.
- Developmental Disorders: Certain neurological disorders, such as autism, increase the likelihood of epilepsy.
In some cases, the cause remains unknown, highlighting the complex nature of the condition.
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Symptoms of Seizures
Seizure symptoms can vary widely depending on the type and area of the brain affected. Common signs include:
- Sudden jerking movements or stiffness
- Loss of consciousness
- Confusion or unresponsiveness
- Rapid blinking or staring spells
- Rhythmic nodding or shaking
Seizures may last only a few seconds or persist for several minutes. Following an episode, a person may feel disoriented or fatigued.
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Treatment Options for Epilepsy
Managing epilepsy often involves a combination of treatments tailored to the individual. As per Dr Bhakti Gajjar, Neuro-physician, HCG Hospitals, Ahmedabad, key approaches include:
Medications
Antiepileptic drugs are the primary treatment, helping control seizure frequency and intensity. However, medications must be taken consistently to be effective. Fatima Sana Shaikh initially struggled with this aspect, choosing to avoid medication and experiencing increased episodes as a result. Regular monitoring, including blood tests and electroencephalograms (EEG), helps doctors adjust dosages and track the medication's effectiveness.
Diet Modifications
The ketogenic diet, high in fats and low in carbohydrates, is sometimes recommended for individuals who do not respond well to medications. This diet has been shown to reduce seizure frequency in certain cases, although it may not be effective for everyone.
Lifestyle Changes
Those with epilepsy are encouraged to make lifestyle adjustments to reduce triggers. Avoiding strobe lights, managing stress, and getting enough sleep are crucial in preventing seizures.
Coping with the Social Stigma
As Fatima highlighted, epilepsy is often misunderstood. The stigma attached to the condition can make it challenging for individuals to seek help openly. Misconceptions may lead people to believe those with epilepsy are either unwell mentally or a danger to others. Fatima shared that even in her career, she sometimes faced misunderstandings from colleagues, though the paparazzi were supportive and considerate about her needs once they were informed.
Embracing Epilepsy with Acceptance
Fatima’s journey reflects the importance of acceptance and self-care in managing epilepsy. Today, she approaches her condition with openness, sharing that some days are challenging, especially when episodes prevent her from working. Her story serves as an inspiration, showing that people with epilepsy can lead fulfilling lives while managing their condition.
In speaking about her experiences, Fatima Sana Shaikh has contributed to raising awareness about epilepsy, shedding light on a condition that affects millions yet remains burdened by misunderstanding. Her resilience and transparency encourage others facing similar challenges to embrace their health journey with courage and confidence.