What is the treatment of Neurofibromatosis?

By  ,  Onlymyhealth editorial team
Oct 10, 2012

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Quick Bites

  • Neurofibromatosis (NF) is a genetic neurological disorder.
  • As of now, there is no cure for Neurofibromatosis 1 or Neurofibromatosis 2.
  • Surgery may be helpful in removing tumors.
  • Hearing aids are ineffective when parts of the auditory nerve are removed.

Neurofibromatosis (NF) is a genetic neurological disorder that can affect the brain, spinal cord, nerves and skin. Tumours, or neurofibromas, grow along the body's nerves or on or underneath the skin.


neurofibromatosis treatment


Neurofibromatosis is classified into two distinct types – neurofibromatosis type 1 (NF1) and NF2. NF1, earlier known as von Recklinghausen's NF, is the more common of the types. NF2, also referred to as bilateral acoustic NF, occurs less frequently.

The tumours arise from changes in the nerve cells and skin cells. Tumours also may press on the body's vital areas as their size increases. NF may lead to developmental abnormalities and/or increased chances of having learning disabilities. Other forms of NF have also been observed; the symptoms are not consistent with that of NF1 or NF2. A rare form of NF is schwannomatosis.



As of now, there is no cure for either NF1 or NF2. So the treatment options considered are actually the ways to treat the effects the disease. Surgery may be helpful in removing tumours, although carry the risk of tumours regenerating.

In case of optic gliomas, the treatment may include surgery and/or radiation. For scoliosis, treatment may include surgery or back braces. For symptoms associated with NF2, surgery may be a viable option, however not without complications that could result in additional loss of hearing or deafness. Hearing aids are ineffective when parts of the auditory nerve are removed.

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  • raj703 Feb 2013

    iamsuffering from neuro fibromas having full bening tumors beneath the skin in the hands and the body plzzzz help me plzzzz

  • hakimuddin03 Jan 2013

    hello siri have problem neurofiabromatosis my all body create dots plz reply wht kind of treatment plz plz sir reply

  • shiv21 Jul 2012

    Hi........... V V I m shiv i m also facing nf problem, i asked lots of Dr. abt them, but i did not get +ve answer

  • v.vijayalakshmi04 Jul 2012

    am affected from Neurofibromatosis am 25 years old .i need treatment for neurofobromatosis . kind