Epidermolysis bullosa (EB) is a group of blistering skin conditions. The condition makes skin so fragile that even minor rubbing may cause blistering. At times, the person with EB may not be aware of rubbing or injuring the skin even though blisters develop.
In severe cases, blisters are not confined to the outer skin. They may develop inside the body, in such places as the linings of the mouth, esophagus, stomach, intestines, upper airway, bladder, and genitals.
People with mild forms of EB may not require extensive treatment. However, they should attempt to keep blisters from forming and prevent infection when blisters occur. Those with moderate and severe forms of the condition may have many complications and require psychological support along with attention to the care and protection of the skin and soft tissues.
When blisters appear, the objectives of care are to reduce pain or discomfort, prevent excessive loss of body fluid, promote healing and prevent infection. The doctors may prescribe a mild analgesic to prevent discomfort during changes of dressings (bandages).
Dressings that are sticking to the skin may be removed by soaking them off in warm water. Although daily cleansing may include a bath with mild soaps, it may be more comfortable to bathe in stages where small areas are cleaned at a time.
In the condition, blisters can become quite large and create a large wound when they break. Therefore, a medical professional will instruct you on how to safely break a blister in its early stages while still leaving the top skin intact.
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